Dearest Sweet Heart Go Go,
Today's is probably one of the hardest day of mommy's life. Unexpectedly we were told around 230pm that you were to go through the muscle biopsy at 3pm. Due to a miscommunication between the hospital and your daddy, we did not know that the procedure was arranged to be @3pm and mommy was not prepared to let you go through this invasive procedure where a cut will be made on your thigh and some muscle removed for analysis.
The pediatric surgeon was from KKH and the muscle tissue will be sent to TTSH for analysis. Mommy knew that this was one the tests which may be required, but for me, it was something to be done at a later stage and probably not now, hence I was heart broken when told that we should still proceed with this test since it will complement the genetic testing results. Daddy wanted the tests to run concurrently so we do not waste time.
As they prepared the room for the procedure, mommy said prayers with you and I pray that the pain will not be too bad for you my poor child because you have not been able to cry to show your displeasure, uncomfort or pain, mommy was very worried about you post-op. The anesthetist was an unfriendly tomboy who insisted that a local GA is sufficient and ignored the fact that you were a special baby who couldn't cry. The other doctors assured mommy that you will be monitored closely based on your heart rate and breathing to ensure that you are not in much pain post-op.
The doctors hope to use the results of the muscle biopsy to rule out the following conditions:
- myopathy (muscle problem)
- to confirm if it's indeed SMA (there will be degenerative muscle fibres)
- myotonic dystrophy
The dept of neuroscience in TTSH will analyse your muscle, the neurons and fibres.
Prayer for today:
- that you will go through the procedure with no pain and discomfort
- that you will have no pain and discomfort post procedure
- you will recover very soon
- you will start to move more parts of your body
- you will breath on your own
- you will restart your tube feeding
Today's is probably one of the hardest day of mommy's life. Unexpectedly we were told around 230pm that you were to go through the muscle biopsy at 3pm. Due to a miscommunication between the hospital and your daddy, we did not know that the procedure was arranged to be @3pm and mommy was not prepared to let you go through this invasive procedure where a cut will be made on your thigh and some muscle removed for analysis.
The pediatric surgeon was from KKH and the muscle tissue will be sent to TTSH for analysis. Mommy knew that this was one the tests which may be required, but for me, it was something to be done at a later stage and probably not now, hence I was heart broken when told that we should still proceed with this test since it will complement the genetic testing results. Daddy wanted the tests to run concurrently so we do not waste time.
As they prepared the room for the procedure, mommy said prayers with you and I pray that the pain will not be too bad for you my poor child because you have not been able to cry to show your displeasure, uncomfort or pain, mommy was very worried about you post-op. The anesthetist was an unfriendly tomboy who insisted that a local GA is sufficient and ignored the fact that you were a special baby who couldn't cry. The other doctors assured mommy that you will be monitored closely based on your heart rate and breathing to ensure that you are not in much pain post-op.
The doctors hope to use the results of the muscle biopsy to rule out the following conditions:
- myopathy (muscle problem)
- to confirm if it's indeed SMA (there will be degenerative muscle fibres)
- myotonic dystrophy
The dept of neuroscience in TTSH will analyse your muscle, the neurons and fibres.
Prayer for today:
- that you will go through the procedure with no pain and discomfort
- that you will have no pain and discomfort post procedure
- you will recover very soon
- you will start to move more parts of your body
- you will breath on your own
- you will restart your tube feeding
Go Go, here is a picture of your Jie Jie Min and Mei Mei Ni Ni to cheer you on!! Get well soon, they are waiting for you at home!
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