Moving

Dearest Nicholas,

While performing some physio for you yesterday, mommy noticed some slight movement in your right leg yesterday and today, mommy saw slight leg movements in both your legs! Praise God! Mommy is praying that your muscle tone will improve over time....

The doctors finally relented and are giving you multi-vitamins (1ml), mommy hopes that this will prevent any infection from setting in.

As it turns out, the dr finally gave in to mommy and daddy's persistance and a PD neurologist from KKH visited you yesterday. The PD n suggested postphoning your extubation until a firm diagnosis is possible from the muscle biopsy.

Dr also updated the following today:
- The SMN1 gene testing results - turns out that it's 95% not SMA. Which is a GOOD news to us. Question is then , what is causing your muscle weakness. Dr are now saying it's myopathy, but they have no idea which sub-category.
- Muscle biopsy verbal results from the stains - most likely not SMA, but again, they cannot pin-point to any "usual" muscle disease yet. They are in touch with the neurologist.
- Myotonia testing - normal.

Prayers for today:
- infection to stay away. your immunity to stay strong.
- your feeding continue to be good with no aspiration
- your swallowing to improve
- lesser secretion in your mouth and in the breathing tube
- Most importantly, God's grace and mercy to be on you that you will be healed.

I love you so much Go Go ..... stay strong, we are all with you!!

Oh yes, mommy's friend, Auntie Lim Huey hand made 2 rosaries, one for you and one for Ni Ni and she made an extra anklet for you .... get well soon!!